Wednesday, November 18, 2009

Update 11/18/09

I just got off the phone with Mom.  She's feeling better and thinks that the steroids are starting to help. She said that the place is amazing and it's so beautiful and everything is decorated for Christmas already. They have a very nice room and feel very comfortable in it. (This hotel caters to Mayo Patients, so it's not like a regular hotel room)

She met with the neurologist today and he was very nice. He spent a long time with her going over all her history.  He thinks that she possibly has a neuromuscular or rheumatological disease that was dormant and that she would have gotten anyway, but the injury to her neck brought it to the surface quicker.  He is sending all of her MRI's to the radiology dept. to have them checked over for anything the Houston doctors might have missed, but he doesn't think she needs neck surgery.

Tomorrow she will have more blood work done to check for things that only Mayo Clinic check for, and for things that haven't already been done.  He wasn't specific only to say that he's checking for neuromuscular and rheumatological diseases.

On Friday, she will have another EMG. This is a test where they place needles all over your body to see how your muscles respond.  This will be the third one of these tests she's had done. It's a painful test, so please be praying for her on Friday for sure!

Then, next Wednesday, she will meet with the Rheumatologist. Well, that's when her appt. is. She will 'check in' everyday with the dept. to see if someone can get her in earlier, but if they can't, then she will definitely see someone next Wednesday.  Then, she will start physical therapy on the 30th.  The neurologist said she can't just keep laying around. So once they have a diagnosis, they will start PT based on that.  He said that not using her muscles is like a vicious cycle. It took her a long time to get to this point and it will be a long time before she gets back to normal, but he said that she will get back to normal. (yea!)

The important thing is that he feels confident that they will get a diagnosis, and that is encouraging.

We're sad they won't be here for Thanksgiving, but I'm glad she's there. We all know that God is in control and He is Sovereign. We just have to cling to that right now while we wait.

Again, thank you all for your prayers. I know my mom appreciates it and covets them.

No comments:

Post a Comment